Agenesis of the Corpus Callosum

What is Agenesis of the Corpus Callosum?
Agenesis of the corpus callosum (ACC) is a birth defect in which the structure that connects the two hemispheres of the brain (the corpus callosum) is partially or completely absent. ACC can occur as an isolated condition or in combination with other cerebral abnormalities, including Arnold-Chiari malformation, Dandy-Walker syndrome, Andermann syndrome, schizencephaly (clefts or deep divisions in brain tissue), and holoprosencephaly (failure of the forebrain to divide into lobes.) Girls may have a gender-specific condition called Aicardi's syndrome, which causes severe mental retardation, seizures, abnormalities in the vertebra of the spine, and lesions on the retina of the eye. ACC can also be associated with malformations in other parts of the body, such as midline facial defects. The effects of the disorder range from subtle or mild to severe, depending on associated brain abnormalities. Intelligence may be normal with mild compromise of skills requiring matching of visual patterns. But children with the most severe brain malformations may have intellectual retardation, seizures, hydrocephalus, and spasticity.

Is there any treatment?

There is no standard course of treatment for ACC. Treatment usually involves management of symptoms and seizures if they occur.


What is the prognosis?

Prognosis depends on the extent and severity of malformations. ACC does not cause death in the majority of children. Mental retardation does not worsen. Although many children with the disorder have average intelligence and lead normal lives, neuropsychological testing reveals subtle differences in higher cortical function compared to individuals of the same age and education without ACC.


What research is being done?

The NINDS conducts and supports a wide range of studies that explore the complex mechanisms of normal brain development. The knowledge gained from these fundamental studies helps researchers understand how the process can go awry and provides opportunities for more effectively treating, and perhaps even preventing, developmental brain disorders such as ACC


all information gathered from the :
Office of Communications and Public Liaison
National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892

What are the miracles of Agenesis of the Corpus Callosum

My nine year old little boy making A-B honor roll for the entire school year at Wilbur Wright Elementary.

Sometimes doctors are not always right when they say the odds are against a child reaching a goal. Take the time to set the goals and help your child achieve them. The pride and happiness they feel is the reminder today's world needs that the little things Really do matter.....

Laura Pausini - Surrender (USA version) videoclip oficial

My friend Barb posted this on my facebook and in her wisdom she can nail my emotions when I cant









I can't pretend anymore
that I am not affected, I'm not moved
I can't lie to myself
that I'm not always thinking of You.
You made strong
to show me I'm not weak to fall in love
well I thought I'd never need
now I can't get enough
I always made it on my own
I always thougt that I would keep control
You changed everything I believed in
And now I just can't fight this feeling, baby!

I raise my hands and I surrender
'Cause Your love is too strong
and I can't go on
Without Your tender arms around me.
I raise my hands and I surrender!
I don't wanna resist
cause your touch and kiss
have shattered my defenses!
I surrender.

I have to admit that I
I never thought I'd need someone this way
'Cause You've opened my eyes so that I
I can see so much more.
I always made it on my own
I always thougt that I would keep control
You changed everything I believed in
And now I just can't fight this feeling, baby!

I raise my hands and I surrender (Oh, I surrender baby)
'Cause Your love is too strong
and I can't go on
Without Your tender arms around me.
I raise my hands and I surrender!
I don't wanna resist
'cause your touch and your kiss
have shattered my defenses!
I surrender...

I surrender to the feeling in my heart, uhuhu
I surrender to the safety of your heart
to the touch of your lips
to the taste of your kisses.

(Choir) I raise my hands and I surrender (oh, baby, baby)
'cause Your love is too strong and I can't go on
without Your tender arms around me, hey!|
(Choir) I raise my hands (oh baby) and I surrender (surrender)
'cause Your love is too strong and I can't go on (without you)
without Your tender arms around me, hey!

I raise my hands and I surrender
'Cause Your love is too strong
and I can't go on
Without Your tender arms around me.
And I surrender

(Choir) Surrender...Surrender...

I can't pretend anymore,
I can't lie to myself
that I'm not always thinking of You.

Deeper

A single rose lies on the counter, with no reason to be or place to grow it withers and fades.

A bright spot of beauty destined to be brown and ugly, wasted from its stalk by a fools dream.


How doe one fall deeper, deeper into a spiral of an uncertain future of when all is not as it should be, a pretty masquerade , a charade and pretty lies. Lies one tells to another to prevent them from being hurt and lies one tells herself to convince herself she hasnt fallen deeper.

When in reality her fantasy is no longer just that, but a destiny waiting to occur, a path that should never be taken a path not meant for her to follow but she will. She will rush headlong down a path of self destruction all in the name of one moment in time of pure unbridled need and desire, needs never met desires never known.

Deeper into the forest she plunges, like a fool on an errand. Deeper into the ocean she swims like a fish on a quest for food.

Dont go deeper for ye will surely drown, deeper is where danger lies and deeper has no meaning no hope of redemption.

Deeper into the night and deeper into the torment of ones burning soul. Answers not there,where do I go.